Friday, September 07, 2007

glow-worthy

Today was the appointment. My thyroid is at 2. That means it is in the perfect range. I feel best when it is under 3. No need for me to whip out the new standards because I am within the new range. However, today marked my 1.5 years since being diagnosed. We have not altered my meds any during this time. Remember the goal is to need to reduce the meds slowly until none is needed. This does not look good for remission. So I am on the path for RAI - otherwise known as I-131. Yes, this is scary, yes this is extreme.

Here are the needed steps:
Step One - take last medicine - done
Step Two - get blood work done (4-6 weeks without meds). This will show my TSH levels without my anti thyroid drugs
Step Three - get uptake scan - so Dr can determine dosage
Step Four - begin low iodine diet one week before RAI
Step Five- get RAI

There are precautions to take after the RAI, but not as bad as if I were getting this for thyroid cancer. I cannot be near people for prolonged periods of time at a close proximity for the first couple of days. I can hug, but not snuggle. That is going to be hard. No kissing, no sex, and that kind of thing.

Now the tricky part is planning all of this. My first timeline had me starting the one week diet right before Halloween. Now, with Weight Watchers and all I would not be going overboard, but chili is not allowed on the low-iodine diet and I have to have my chili on Halloween. Then there is my b-day and Thanksgiving, and Christmas. And part of me wants to wait to do the blood work, because that is what starts everything in motion, until after the first of the year. Of course, even with that said, I am going to be watching my symptoms. And if after the 4-6 weeks if I start to notice all bad symptoms that I had before diagnosis, then I will go ahead and do the blood work.

I am scared of the weight gain. I already gained weight with this disease and treatment, I already paid the price, shouldn't that count for something. And I am fighting so very hard right now to get it off. Which, of course, means that all training plans that are set now will stay in place. I will continue with my walking and power90 workouts. I will beat this.

And speaking of walking. I am not doing the IBM 10k. I know I could finish it. I know that it wouldn't kill me. But when I did my half-marathons I promised myself that I wasn't going to just finish races anymore. I want to feel good afterwards. I want to know that I am prepared. With that said, my knee has been bugging me a little - nothing bad - so I am going to do the 4k fun run instead that day. My main focus is still the LiveStrong Challenge on Oct 13th. And the Turkey Trot on Thanksgiving (5 miles).

When I got to work, BestFriend asked about the appointment. When I told her about the RAI, she asked how I was doing. I realized that I am doing good. I know I hate the thought of it, but I think I have come to terms with it. It is all good. And we only have to wait 6 months post RAI to start trying for #2. And Bug so needs a #2.

Thankful for:
6 - The ability to walk. While I may never be a runner, I am able to move my body and for this I am grateful. On my walk yesterday, I saw a woman in a wheel chair. I do not know any of the details. But it reminded me that I am very lucky.

7 - My health. Though I do have an autoimmune disease and have to make some decisions, it could be so much worse. I am grateful that I am not so sick that I do not have time to think about my options.

2 comments:

Patti said...

Keep us posted on the RAI. Let us know if we can do anything.

Kami said...

I'm so glad you have the outlook you have!